Saturday, October 23, 2010

Life with an extrodinary little girl

While I will not share specifics here on this blog, I will say that Jesus has tenderly gifted us with a very special little girl named Betsy. She has taught us so many things about life, love, perseverance, faith, suffering, God, and what really matters in life. She has taught us to really treasure every single day, every moments we have together. A few months ago a local Raleigh magazine ran a story about one of the realities of her life...and of our lives as well. If you think of her...please pray. She's  doing much better then any of us could ever have imagined and continues to defy her doctors' expectations and explanations. Almost every time we get some horrible new about how she is supposed to be doing, she up and rallies and puts us all to shame. A lot of the time you would never know of her condition. She has Mitochondrial Disease Cox III Enzyme Deficiency Disorder. Look it up if you're really curious. Just DON'T share detail with her, please. We  are just going to love her to pieces as love as we have her. And that is the rest of the story.
http://www.spcawake.org/site/PageServer?pagename=CritterChatterHTML810Page5

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